Professional & Clinical Resources

Paediatric Endocrine Guidelines

Category Guideline Type Source Date of document Review date
Adrenal Insufficiency

Adrenal Insufficiency Consensus Guidelines

BSPED BSPED Nov 2022 Nov 2028
Bone

Recommendation of Endocrine & Bone Monitoring in Duchenne Muscular Dystrophy (DMD) in the UK NorthStar Network

Endorsed DMD Care UK Oct 2023 Oct 2026
Bone

UK guidance of clinical monitoring of bone and endocrine outcomes in individuals with DMD on vamorolone and switching from classic glucocorticoid to vamorolone

Endorsed DMD Care UK March 2025 March 2028
DSD

UK Guidance on the Initial Evaluation of an Infant or an Adolescent with a Suspected Disorder of Sex Development

Endorsed Society for Endocrinology April 2021 May 2026
DSD

Clinical Standards for Management of an Infant or Adolescent presenting with a suspected differences of sex development (DSD)

BSPED BSPED Nov 2017 June 2026
Growth BSPED recommendations for the use of once-weekly long-acting growth hormone therapy in children with growth hormone deficiency BSPED BSPED SIG Oct 2025 Oct 2028
Growth

UK consensus guidelines for multidisciplinary care of children and young people with achondroplasia: a modified Delphi process

Endorsed BMJ Dec 2025 Dec 2028
Growth

BSPED UK Consensus National Guidelines for Sex Hormone Priming for Growth Hormone (GH) Stimulation Testing

BSPED BSPED Nov 2025 Nov 2028
Growth

Shared care guidelines: Paediatric use of Recombinant Human Growth Hormone (r-hGH)

BSPED BSPED

Dec 2023

Jan 2027
Growth

Recommendations for Recombinant IGF-1 therapy in Children with severe insulen resistent Syndromes

BSPED BSPED SIG

May 2024

Revision: Dec 2025

May 2027
Growth BSPED Recommendations for Recombinant IGF-I Therapy in Children with Severe Primary IGF-I Deficiency (SPIGFD) BSPED BSPED SIG

Dec 2023

Revision: Dec 2025

April 2027
Growth Growth Monitoring for Children with Chronic Kidney Disease Endorsed BSPED/BAPN/PRING March 2024 March 2027
Growth BSPED recommendations for the initial clinical assessment, investigation and genetic testing of children with growth failure and/or short stature BSPED BSPED SIG Nov 2022 Nov 2026
Growth Clinical Standards For GH Treatment Of Growth Disorders Excluding GHD 2026 BSPED BSPED SIG Dec 2023 Dec 2026
Growth Clinical Standards for GH treatment of GH deficiency (GHD)
in Childhood and Adolescence
BSPED BSPED SIG Aug 2022 Aug 2027
Growth Guidance for use of aromatase inhibitors (AI) to optimise linear growth and preserve final height BSPED BSPED SIG Jan 2026 Jan 2029
Growth Guidance for use of gonadotropin-releasing hormone analogues (GnRHa) to optimise linear growth and final height BSPED BSPED SIG Jan 2026 Jan 2029
Puberty / Gonads Hormone Supplementation for Pubertal Induction in Girls BSPED BSPED Sept 2025 Sept 2028
Puberty / Gonads Testosterone Replacement Guidelines  BSPED BSPED Aug 2024 Aug 2027
Puberty / Gonads Shared care guidelines: Use of Gonadotrophin Releasing Hormone (GnRH) Agonists BSPED BSPED Sept 2025 Sept 2028
Puberty / Gonads GnRH Analogue Stimulation Testing to Investigate Precocious Puberty BSPED BSPED

Jul 2021

Revision: Apr 26

Apr 2029
Oncology CCLG: Rare Endocrine Tumour guidelines: Craniopharyngioma Endorsed CCLG 2021 2026
Oncology CCLG: Rare Endocrine Tumour guidelines: Idiopathic thickened pituitary stalk (iTPS) and/or idiopathic central diabetes insipidus (CDI) Endorsed CCLG 2021 2026
Oncology CCLG: Paediatric Differentiated Thyroid Carcinoma: UK National Clinical Practice Consensus Guideline Endorsed CCLG 2021 2026
Turner Syndrome Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome Endorsed ESPE/International Consensus 2024 2028

Local/ Other Endocrine Guidelines and Useful Resources

These guidelines are local/other endocrine guidelines which have been made available to BSPED members. The BSPED have not been involved in the development of these guidelines and take no responsibility for the content. Please note local guidelines may vary between Trusts.

If a local trust wishes to publish their guidelines on the BSPED website, please email the BSPED Office ([email protected]) and we will put you in touch with our Clinical Guidelines Officer.

Category Guideline Type Source Date of document
Adrenal

The Investigation of suspected Paediatric Cushing’s Syndrome

Supported Barts and the London School of Medicine April 2021
Puberty/Gonads

Protocol for Induction of Puberty with Gonadotropins in Adolescent Males with GnRH or Gonadotropin Deficiency

Supported QMUL/Barts/UCLH/Alder Hey May 2025
Thyroid

Paediatric Graves Disease Guideline 2022

Supported British Thyroid Association Guideline management of Paediatric Graves disease 2022
Hyperinsulinism

Management of Congenital Hyperinsulinism 2023

Supported UK national consensus 2023
Prader-Willi Syndrome

Prader–Willi syndrome: guidance for children and transition into adulthood

Supported PWS Network consensus group  July 2024