BSPED Special Interest Groups

BSPED Special Interest Groups (SIGs) bring together professionals involved in a particular area of paediatric endocrinology or diabetes to collaboratively achieve at least one of the following:

  • maintain and advance clinical standards of care in the specific field (through guidelines, standards of care, audit, service evaluation etc)
  • advance research in the specific field
  • improve the quality of training and knowledge sharing for professionals in the specific field

BSPED SIGs are managed according to these Terms of Reference, detailing how they are created, governed and managed and what both the BSPED and the SIG can expect.

The following are currently supported as official BSPED Special Interest Groups:

 

The Adolescent and Young Adult (AYA) Special Interest Group 

The Adolescent and Young Adult Special Interest Group (AYASIG) brings together paediatric and adult endocrinologists to focus on the care and management of endocrine and diabetes care during adolescence and the period of transition from paediatric to adult services. The AYASIG aims to improve the delivery of endocrine care for adolescents and young adults across the UK from both the clinical and patient perspective, and to improve the quality of training for paediatric and adult endocrinologists. Please contact Paul Dimitri if you would like further information about this group.

 

The Disorders of Sex Development (DSD) Special Interest Group

The Disorders of Sex Development (DSD) Special Interest Group (SIG) aims to improve management and care provision for patients with DSD across the UK. The DSD SIG meets annually to a full day working meeting and at the BSPED annual conference to discuss cases and provide updates on national and international developments, develop audit and clinical projects, update on research projects and plan and develop joint research projects. Please contact Nils Krone if you are interested and in being included on the mailing list for this group.

 

The Congenital Hyperinsulinism (CHI) Special Interest Group

Congenital Hyperinsulinism (CHI) is a rare disease of hypoglycaemia but is the commonest cause for persistent and recurrent hypoglycaemia in young children. Hypoglycaemia due to CHI can have significant brain impact if not treated promptly. Two centres in England are designated CHI centres - Northern CHI [Royal Manchester Children's and Alder Hey Children's Hospital] and Great Ormond Street CHI services.

Many paediatric endocrinology centres in the UK work closely with the CHI centres to ensure identification and management of hypoglycaemia due to CHI. It is important to strengthen such referral networks to provide local care to patients as far as possible while improving the quality of UK wide CHI services. The CHI Special Interest Group (CHI SIG) has been developed as a forum within BSPED to encourage paediatric endocrinologists, pediatricians and neonatologists involved in the management of children with hypoglycaemia to discuss safety and quality of care as well as forge research networks. Please contact Indi Bannerjee to be involved in the group.

 

Diabetic Ketoacidosis (DKA) Special Interest Group
There has been much interest in setting up a Special Interest Group to look at the current management of diabetic ketoacidosis (DKA). The group will review the BSPED DKA guidelines and clinical management of DKA. BSPED Diabetes Officer Fiona Campbell will be setting up a meeting of the group at the RCPCH in London in early 2019. If you would like to join, or indeed lead, this group, please contact bsped@endocrinology.org.

 

CYP Type 2 Diabetes Special Interest Group
The Children and Young People Type 2 Diabetes Special Interest Group aims to improve the care of children and adolescents with type 2 diabetes. The group is composed of multi-disciplinary professionals across all Paediatric Diabetes Networks in the U.K. Meetings are held regularly to share experiences in the management, research and training in CYP with type 2 diabetes. Please contact Dr Billy White or Usha Parkash (Children and Young People’s South East Coast & London Diabetes Network Manager) and refer to the CYP diabetes Network website for further information if you are interested.

 

Hypothalamic & Pituitary Axis Tumour (HPAT) Special Interest Group

The Hypothalamic and Pituitary Axis Tumour (HPAT) Special Interest Group brings together paediatric neuroendocrine and pituitary professionals from across the UK to better understand, and raise awareness of, the life limiting neuroendocrine morbidity of hypothalamic injury, and improve functional outcomes of children and young people under 19 years of age (CYP) with diverse suprasellar hypothalamo-pituitary axis tumours. The group aims to train, establish and support tertiary paediatric neuroendocrine experts in all national paediatric CCLG-affiliated neuroncology centres, to lead alongside age-appropriate neurosurgical, neuro-oncology, neuropathology and neuroradiology experts in decision making MDTs, peri-operative care and long term health provision across age transitions, according to 2019 forthcoming collaborative CCLG and BSPED guidelines endorsed by RCPCH. Importantly, the HPAT SIG aims:

  • to build on existing collaborative interdisciplinary guidance initiatives and the national virtual HPAT discussion forum by establishing collaborative intersociety national outcome registries for continuous audit, guideline update and research, and
  • to establish formal relationships with national and international multidisciplinary working groups and representative bodies to ensure streamlined safe, and equitable neuroendocrine care.
  • to identify areas of need and to support research to advance the neuroendocrine care of children and young people with HPATs

Please contact Paul Dimitri if you would like further information about this group.