BSPED Special Interest Groups (SIGs) bring together professionals involved in a particular area of paediatric endocrinology or diabetes to collaboratively achieve at least one of the following:
- maintain and advance clinical standards of care in the specific field (through guidelines, standards of care, audit, service evaluation etc)
- advance research in the specific field
- improve the quality of training and knowledge sharing for professionals in the specific field
BSPED SIGs are managed according to these Terms of Reference, detailing how they are created, governed and managed and what both the BSPED and the SIG can expect. If you have a proposal for a new BSPED SIG, please contact the BSPED Office, outlining in writing the need (and lack of existing body to meet this need), mission of the group, expected output of the group and expected longevity of the group. The proposal must be accompanied by at least one expression of interest for a potential coordinator of the group. The BSPED have expressed interest in operating an 'Endocrine and Diabetes Transition' SIG and would especially welcome applications in this area.
The following are currently supported as official BSPED Special Interest Groups:
The Disorders of Sex Development (DSD) Special Interest Group (SIG) aims to improve management and care provision for patients with DSD across the UK. The DSD SIG meets annually to a full day working meeting and at the BSPED annual conference to discuss cases and provide updates on national and international developments, develop audit and clinical projects, update on research projects and plan and develop joint research projects. Please contact Mars Skae if you are interested and in being included on the mailing list for this group.
Congenital Hyperinsulinism (CHI) is a rare disease of hypoglycaemia but is the commonest cause for persistent and recurrent hypoglycaemia in young children. Hypoglycaemia due to CHI can have significant brain impact if not treated promptly. Two centres in England are designated CHI centres - Northern CHI [Royal Manchester Children's and Alder Hey Children's Hospital] and Great Ormond Street CHI services.
Many paediatric endocrinology centres in the UK work closely with the CHI centres to ensure identification and management of hypoglycaemia due to CHI. It is important to strengthen such referral networks to provide local care to patients as far as possible while improving the quality of UK wide CHI services. The CHI Special Interest Group (CHI SIG) has been developed as a forum within BSPED to encourage paediatric endocrinologists, pediatricians and neonatologists involved in the management of children with hypoglycaemia to discuss safety and quality of care as well as forge research networks. Please contact Indi Banerjee to be involved in the group.
The Children and Young People Type 2 Diabetes Special Interest Group aims to improve the care of children and adolescents with type 2 diabetes. The group is composed of multi-disciplinary professionals across all Paediatric Diabetes Networks in the U.K. Meetings are held regularly to share experiences in the management, research and training in CYP with type 2 diabetes. Please contact Dr Billy White or Usha Parkash (Children and Young People’s South East Coast & London Diabetes Network Manager) and refer to the CYP diabetes Network website for further information if you are interested.
The Growth Disorders Special Interest Group (SIG) aims to improve the recognition, diagnosis and management of growth disorders in the UK and to coordinate research efforts in the field.
The aims of the group are to:
· Work closely with patient groups
· Develop collaborative research projects and audit
· Develop evidence-based guidelines
· Gather experts in the field to facilitate consensus statements
· Create a 'go to' group for external pharmaceutical clinical trials
· Liaise and collaborate with international working groups e.g. ERN, ESPE and 100k Genomes project
Please contact Helen Storr to join the group or for more information
The Hypothalamic and Pituitary Axis Tumour (HPAT) Special Interest Group brings together paediatric neuroendocrine and pituitary professionals from across the UK to better understand, and raise awareness of, the life limiting neuroendocrine morbidity of hypothalamic injury, and improve functional outcomes of children and young people under 19 years of age (CYP) with diverse suprasellar hypothalamo-pituitary axis tumours. The group aims to train, establish and support tertiary paediatric neuroendocrine experts in all national paediatric CCLG-affiliated neuroncology centres, to lead alongside age-appropriate neurosurgical, neuro-oncology, neuropathology and neuroradiology experts in decision making MDTs, peri-operative care and long term health provision across age transitions, according to 2019 forthcoming collaborative CCLG and BSPED guidelines endorsed by RCPCH. Importantly, the HPAT SIG aims:
- to build on existing collaborative interdisciplinary guidance initiatives and the national virtual HPAT discussion forum by establishing collaborative intersociety national outcome registries for continuous audit, guideline update and research, and
- to establish formal relationships with national and international multidisciplinary working groups and representative bodies to ensure streamlined safe, and equitable neuroendocrine care.
- to identify areas of need and to support research to advance the neuroendocrine care of children and young people with HPATs
Please contact Paul Dimitri if you would like further information about this group.
Thyroid disorders are relatively common in paediatric endocrine practice but there are uncertainties regarding how best to investigate and manage a number of these conditions.
The mission of the Thyroid SIG is to provide a forum for improving the knowledge of, management and outcomes of children with disorders of thyroid function in the UK and elsewhere.
The group hopes to focus on various groups of children including babies with congenital hypothyroidism, children with compensated hypothyroidism, Graves’ disease as well as patients with rare disorders such as those affecting thyroid hormone transport. The SIG is open to anyone with an interest in this area including paediatric endocrinologists, endocrinologists, paediatricians ‘with an interest’, specialist nurses and laboratory scientists. The SIG will work closely with families and family support organisations.
Please contact Catherine Peters or Tim Cheetham if you are interested in being part of this group.