Useful Links

Below are links to other societies, organisations and website that may be helpful to paediatric endocrinologists and diabetologists. The BSPED does not have responsibility for the content of the websites linked to from this page.

 

Endocrine Resources

Addisons Disease Self Help Group The ADSHG is the support group in the UK and Ireland for people with Addison’s disease or adrenal insufficiency and their families, working to support its those with adrenal failure and to promote better medical understanding of this rare condition.
ALD LIFE ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically.
ASPED Arab Society of Paediatric Endocrinology and Diabetes
BritSPAG The British Society for Paediatric and Adolescent Gynaecology
British Thyroid Foundation The British Thyroid Foundation is a charity dedicated to supporting people with thyroid disorders and helping their families and people around them to understand the condition.
Child Growth Foundation The Foundation is the UK's leading charity relating to children's growth
CCLG Aftercure Patient information on the late effects after treatment for childhood cancer survivors
The Daisy Network  Patient support group for women with premature ovarian insufficiency
Diabetes Insipidus Foundation Support group
DSD Families Resources for professionals working with people with Disorders of Sex Development
Endocrine Society The Endocrine Society is dedicated to promoting excellence in research, education and clinical practice in the field of endocrinology.
ESE European Society of Endocrinology
ESPE European Society for Paediatric Endocrinology
ESPU European Society for Paediatric Urology
Endolinx Good site for endocrinology news and developments
Explain Me Explain was developed as part of a project to improve communication between young people, their parents/carers and healthcare professionals in endocrine clinics.
Hypoparathyroidism UK HPTH UK is the only organisation dedicated to improving the diagnosis, prevention and treatment of hypoparathyroidism and other parathyroid conditions in the UK.
International DSD Registry Registry for DSD, CAH and Turner Syndrome.
Intersex Society of North America The Intersex Society of North America is a resource for people seeking information and advice about atypical reproductive anatomies
Johns Hopkins University Division of Pediatric Endocrinology in the Department of Pediatrics at the Johns Hopkins University in Baltimore.
Klinefelters Syndrome Association UK This site exists to support all those affected by Klinefelter's Syndrome (KS).
PES

Pediatric Endocrine Society (formally the Lawson Wilkins Pediatric Endocrine Society).

Pituitary Foundation

 

Prader-Willi Syndrome Association UK

 

RCPCH

Leaflets created to inform people about the rare conditions being studied by the BPSU in a straightforward and lay-friendly manner.

Scottish Paediatric Endocrine Group

Scottish Paediatric Endocrine Group

Silver Russell Syndrome

The Child Growth Foundation's information leaflet on Silver Russell Syndrome

Society for Endocrinology

The Society for Endocrinology aims to promote the advancement of public education in endocrinology.

Turner Syndrome Support Society

The aim is to offer support & information to girls & adult women with Turner Syndrome, their families and friends.

Verity

Verity is a self-help group for women with polycystic ovary syndrome (PCOS).

WHO growth database

Global Database on Child Growth and Malnutrition

You & your hormones

You & Your Hormones is a website aimed at patients and the general public that provides accurate and reliable information on hormones and hormone-related conditions.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Diabetes Resources

Children With Diabetes  Website and facebook site for families living with Type 1 diabetes.
DiabetesGenes.org  Essential site for non-type 1 diabetes from Andrew Hattersley's group in Exeter. Includes forms for sample despatch and research information.
Diabetes Monitor Provides information, education and support for people with diabetes.
Diabetes UK Diabetes UK mission is to improve the lives of people with diabetes and to work towards a future without diabetes.
ISPAD International Society for Paediatric and Adolescent Diabetes.
JDRF International Juvenile Diabetes Research Foundation International.
JDRF UK Juvenile Diabetes Research Foundation UK.
Medical Conditions at School For school staff and healthcare professionals supporting pupils with medical conditions.
NHS Diabetes NHS Diabetes is a national organisation supporting improvement in diabetes services.
NHS Direct For health advice and reassurance, 24 hours a day, 365 days a year.
NIDDK National Institute of Diabetes and Kidney Disease.