Professional & Clinical Resources

Guidelines and Standards

The UK standards for Paediatric Endocrinology are below, followed by other guidelines and standards sorted into endocrine and diabetes.

Each patient should be considered as an individual in the context of their condition and other medication and therefore the readers' discretion is required in the application of their use of these guidelines and standards. Every effort has been made to ensure the factual accuracy of the contents but no liability can be accepted for any litigation, claims or complaints arising from the use of the guidelines and standards.

If you have a query or comment, or would like to raise a concern about any document on this page, please contact the BSPED Office who will ensure your message is passed to the BSPED Clinical Guidelines Officer and Clinical Committee.

Included on this page are:

  • BSPED Guidelines and Standards (guidelines produced for the BSPED): Commissioned and developed by BSPED and reflect the Society's views on best practice for the majority of patients with that condition. 

  • BSPED Endorsed Guidelines and Standards: Produced by accredited national bodies (e.g. NICE, RCPCH, ACDC) of which BSPED are stakeholders. BSPED may have been involved in the development, but are not the original authors.

  • Local Guidelines: The BSPED has not been involved in the development of these guidelines and takes no responsibility for the content. Please note local guidelines may vary between trusts.

For BSPED endorsement of a guideline or standard please review the BSPED Clinical Guideline/Standard Endorsement Process. Authors of guidelines/standards are required to sign the BSPED Declaration of Interest form (definitions of conflicting interests are listed on the form).

UK standards for Paediatric Endocrinology

The UK standards for Paediatric Endocrinology were initially published in 2019 and have been updated in 2024 by the BSPED. They are endorsed by the Royal College of Paediatrics and Child Health. The standards apply to all children and young people aged 0-18 years with an endocrine condition. The aims of the standards are to reduce variability in care and to ensure that equitable services providing high quality, safe and effective care are available to all children and families across the UK. The standards are intended for healthcare professionals and for service commissioners to plan, deliver and quality assure paediatric endocrine services. Review date: January 2029.

targetSection: Guidelines Repository

Category

Guideline

Type

Source

Date of document

Review date

Adrenal Insufficiency

Adrenal Insufficiency Consensus Guidelines

BSPED

BSPED

Nov 2022

Nov 2028

Bone

Recommendation of Endocrine & Bone Monitoring in Duchenne Muscular Dystrophy (DMD) in the UK NorthStar Network

Endorsed

DMD Care UK

Oct 2023

Oct 2026

Bone

UK guidance of clinical monitoring of bone and endocrine outcomes in individuals with DMD on vamorolone and switching from classic glucocorticoid to vamorolone

Endorsed

DMD Care UK

March 2025

March 2028

DSD

UK Guidance on the Initial Evaluation of an Infant or an Adolescent with a Suspected Disorder of Sex Development

Endorsed

Society for Endocrinology

April 2021

May 2026

DSD

Clinical Standards for Management of an Infant or Adolescent presenting with a suspected differences of sex development (DSD)

BSPED

BSPED

Nov 2017

June 2026

Growth

BSPED recommendations for the use of once-weekly long-acting growth hormone therapy in children with growth hormone deficiency

BSPED

BSPED SIG

Oct 2025

Oct 2028

Growth

UK consensus guidelines for multidisciplinary care of children and young people with achondroplasia: a modified Delphi process

Endorsed

BMJ

Dec 2025

Dec 2028

Growth

BSPED UK Consensus National Guidelines for Sex Hormone Priming for Growth Hormone (GH) Stimulation Testing

BSPED

BSPED

Nov 2025

Nov 2028

Growth

Shared care guidelines: Paediatric use of Recombinant Human Growth Hormone (r-hGH)

BSPED

BSPED

Dec 2023

Jan 2027

Growth

Recommendations for Recombinant IGF-1 therapy in Children with severe insulen resistent Syndromes

BSPED

BSPED SIG

May 2024

Revision: Dec 2025

May 2027

Growth

BSPED Recommendations for Recombinant IGF-I Therapy in Children with Severe Primary IGF-I Deficiency (SPIGFD)

BSPED

BSPED SIG

Dec 2023

Revision: Dec 2025

April 2027

Growth

Growth Monitoring for Children with Chronic Kidney Disease

Endorsed

BSPED/BAPN/PRING

March 2024

March 2027

Growth

BSPED recommendations for the initial clinical assessment, investigation and genetic testing of children with growth failure and/or short stature

BSPED

BSPED SIG

Nov 2022

Nov 2026

Growth

Clinical Standards For GH Treatment Of Growth Disorders Excluding GHD 2026

BSPED

BSPED SIG

Dec 2023

Dec 2026

Growth

Clinical Standards for GH treatment of GH deficiency (GHD)
in Childhood and Adolescence

BSPED

BSPED SIG

Aug 2022

Aug 2027

Growth

Guidance for use of aromatase inhibitors (AI) to optimise linear growth and preserve final height

BSPED

BSPED SIG

Jan 2026

Jan 2029

Growth

Guidance for use of gonadotropin-releasing hormone analogues (GnRHa) to optimise linear growth and final height

BSPED

BSPED SIG

Jan 2026

Jan 2029

Puberty / Gonads

Hormone Supplementation for Pubertal Induction in Girls

BSPED

BSPED

Sept 2025

Sept 2028

Puberty / Gonads

Testosterone Replacement Guidelines 

BSPED

BSPED

Aug 2024

Aug 2027

Puberty / Gonads

Shared care guidelines: Use of Gonadotrophin Releasing Hormone (GnRH) Agonists

BSPED

BSPED

Sept 2025

Sept 2028

Puberty / Gonads

GnRH Analogue Stimulation Testing to Investigate Precocious Puberty

BSPED

BSPED

Jul 2021

Revision: Apr 26

Apr 2029

Oncology

CCLG: Rare Endocrine Tumour guidelines: Craniopharyngioma

Endorsed

CCLG

2021

2026

Oncology

CCLG: Rare Endocrine Tumour guidelines: Idiopathic thickened pituitary stalk (iTPS) and/or idiopathic central diabetes insipidus (CDI)

Endorsed

CCLG

2021

2026

Oncology

CCLG: Paediatric Differentiated Thyroid Carcinoma: UK National Clinical Practice Consensus Guideline

Endorsed

CCLG

2021

2026

Turner Syndrome

Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome

Endorsed

ESPE/International Consensus

2024

2028

Local/ Other Endocrine Guidelines and Useful Resources

These guidelines are local/other endocrine guidelines which have been made available to BSPED members. The BSPED have not been involved in the development of these guidelines and take no responsibility for the content. Please note local guidelines may vary between Trusts.

If a local trust wishes to publish their guidelines on the BSPED website, please email the BSPED Office ([email protected]) and we will put you in touch with our Clinical Guidelines Officer.

Category

Guideline

Type

Source

Date of document

Adrenal

The Investigation of suspected Paediatric Cushing’s Syndrome

Supported

Barts and the London School of Medicine

April 2021

Puberty/Gonads

Protocol for Induction of Puberty with Gonadotropins in Adolescent Males with GnRH or Gonadotropin Deficiency

Supported

QMUL/Barts/UCLH/Alder Hey

May 2025

Thyroid

Paediatric Graves Disease Guideline 2022

Supported

British Thyroid Association Guideline management of Paediatric Graves disease

2022

Hyperinsulinism

Management of Congenital Hyperinsulinism 2023

Supported

UK national consensus

2023

Prader-Willi Syndrome

Prader–Willi syndrome: guidance for children and transition into adulthood

Supported

PWS Network consensus group 

July 2024

 

 

Guideline

Type

Source

Date of document /last updated

Review date

DKA Guidelines and Calculator

BSPED

BSPED

See DKA Guidelines page

Nov 2024

Diabetes (type 1 and type 2) in children and young people: diagnosis and maagement

Endorsed

NICE

Dec 2020

May 2023

Guidelines on the Handling of Insulin Requests and Reports

Endorsed

BAPM

Sept 2025

Sep 2028

 

ACDC Endorsed Diabetes Guidelines

Please refer to the ACDC website for Endorsed Guidelines for the most up to date diabetes guidelines listed below.

Guideline

Type

Source

Executive summary - A Practical Approach to the Management of Type 2 Diabetes in children and young people under 18yrs

Endorsed

ACDC/BSPED

Care of the Well Child-Newly Diagnosed with Type 1 Diabetes

Endorsed

ACDC/BSPED

Sick day guideline executive summary v4

Endorsed

ACDC/BSPED

Sick day guideline Main V4

Endorsed

ACDC/BSPED

Management of Hypoglycaemia in Children and Young People with Type 1 Diabetes

Endorsed

ACDC/BSPED

A Practical Approach to the Self Management of Diabetes As An Inpatient for Children and Young People Under 18 years

Endorsed

ACDC/BSPED

A Practical Approach to the Management of Continuous Glucose Monitoring (CGM) / Real-Time Flash Glucose Scanning (FGS) in Type 1 Diabetes Mellitus in Children and Young People Under 18 years

Endorsed

ACDC/BSPED

A Practical Approach to the Management of Steroid, Chemotherapy or Transplant Induced Hyperglycaemia or Diabetes in Children and Young People Under 18 years in the Acute or Inpatient Setting

Endorsed

ACDC/BSPED

Dexcom G4 CGM Training Leaflet for Healthcare Professionals and Patients

Endorsed

ACDC/BSPED

Dexcom G5 CGM Training Leaflet for Healthcare Professionals and Patients

Endorsed

 ACDC/BSPED

Dexcom G6 CGM Training Leaflet for Healthcare Professionals and Patients

Endorsed

ACDC/BSPED

Medtronic 640G Training Leaflet for Healthcare Professionals and Patients

Endorsed

ACDC/BSPED

Libre FGS Training Leaflet for Healthcare Professionals and Patients

Endorsed

ACDC/BSPED

Care of children under 18 years with Diabetes Mellitus undergoing Surgery - currently being updated

Endorsed

ACDC/BSPED

Executive Summary: A Practical Approach to the Management of Continuous Glucose Monitoring (CGM) / Real-Time Flash Glucose Scanning (FGS) in Type 1 Diabetes Mellitus in Children and Young People Under 18 years

Endorsed

ACDC/BSPED

Practical Management of Hyperglycaemic Hyperosmolar State (HHS) in children

Endorsed

ACDC/BSPED

Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules)

Endorsed

ACDC/BSPED

Executive Summary- Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules)

Endorsed

ACDC/BSPED

Patient Advice for Management of Type 1 Diabetes Mellitus during illness in children and young people under 18 years (Sick Day Rules)

Endorsed

ACDC/BSPED

Chaperone documentation for clinical notes (provided by Birmingham Children's Hospital):

Word version, Excel version, PowerPoint version