Resources
Endocrinology Information and Support Groups
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2001 CDC charts from Atlanta | |
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Adrenal hyperplasia network | |
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ALD LIFE | ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. |
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Androgen Insensitivity Group | Support to young people and adults with complete and partial Androgen Insensitivity Syndrome (AIS). |
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Anorchidism Support Group | The Anorchidism Support Group was formed to serve and support any person, or families of boy's, with congenital (or acquired) absence of the testes. |
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British Thyroid Foundation | Website for information |
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CAH | Patient and family information from John Hopkins. |
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Living with CAH | Patient and family support in UK. |
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Child Growth Foundation | The Foundation is the UK's leading charity relating to children's growth |
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COPES | International Communcation Office of Paediatric Endocrine Societies |
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Diabetes Insipidus Foundation | Support group |
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Down's growth charts | Downloadable Down's charts |
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ESE | European Society of Endocrinology |
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Endobible | |
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Endocrine Society | |
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ESPE | European Society for Paediatric Endocrinology |
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ESPU | European Society for Paediatric Urology |
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Endolinx | Good site for endocrinology news and developments |
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The Hormone Foundation | The Hormone Foundation is dedicated to serving as a resource for the public by promoting the prevention, treatment and cure of hormone-related conditions. |
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HYPOHH.net | A patient support organisation for people with one of a specific group of rare hormonal diseases called hypogonadotrophic hypogonadism |
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Intersex Society of North America | |
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Intersex | Patient and family information from John Hopkins |
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Japanese Society for Pediatric Endocrinology (JSPE) | JSPE has just launched the English Home Page. |
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Learning about growth | Serono-sponsored Information site |
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PES | Pediatric Endocrine Society (formally the Lawson Wilkins Pediatric Endocrine Society) |
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Noonan's syndrome | |
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Pediatric Endocrinology Mailing List | Hosted by Yahoo |
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Pituitary Foundation | |
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The Pituitary Society | |
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Scottish Genital Anomaly Network | A network of a multidisciplinary group of health care professionals with the aim of providing an optimal level of care to affected patients through the development of a managed clinical network (MCN). |
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The Short Stature Forum | |
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Society for Endocrinology | |
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Society for the Study of Inborn Errors of Metabolism | |
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Testosterone Deficiency Centre | |
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Turner Syndrome Support Society | |
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WHO growth database | |
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XYXO | Mixed Gonadal Dysgenesis Support group |
