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home > professionals > resources > endocrinology info and support
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 Endocrinology information and support groups

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2001 CDC charts from Atlanta  
Adrenal hyperplasia network  
ALD LIFE ALD LIFE aims  to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically
Androgen Insensitivity Group Support to young people and adults with complete and partial Androgen Insensitivity Syndrome (AIS)
Anorchidism Support Group The Anorchidism Support Group was formed to serve and support any person, or families of boy's, with congenital (or acquired) absence of the testes.
CAH  Patient and family information from John Hopkins
CAH  Patient and family support in UK
Child Growth Foundation The Foundation is the UK's leading charity relating to children's growth
Diabetes Insipidus Foundation Support group
Down's growth charts   Downloadable Down's charts
EFES European Federation of Endocrine Societies
Endocrine Society  
ESPE European Society for Paediatric Endocrinology
ESPU European Society for Paediatric Urology
Endolinx Good site for endocrinology news and developments
Hermaphrodite Education and Listening Post  
The Hormone Foundation The Hormone Foundation is dedicated to serving as a resource for the public by promoting the prevention, treatment and cure of hormone-related conditions.
HYPOHH.net A patient support organisation for people with one of a specific group of rare hormonal diseases called hypogonadotrophic hypogonadism
Intersex Society of North America  
Intersex  Patient and family information from John Hopkins
Japanese Society for Pediatric Endocrinology (JSPE) JSPE has just launched the English Home Page.
KIGS Contributors only, via password available from Milton Keynes Office
Learning about growth Serono-sponsored Information site
LWPES Lawson Wilkins US site.
NIH rare diseases index Another site that lists links to groups providing information on a huge number of rare disorders
Noonan's syndrome  
Pediatric Endocrinology Mailing List Hosted by Yahoo
Pituitary Foundation  
The Pituituary Society  
Ray Williams Paediatric Endocrine Centre Sydney, Australia. Includes anthropometric standards, guidelines and texts.
Scottish Genital Anomaly Network A network of a multidisciplinary group of health care professionals with the aim of providing an optimal level of care to affected patients through the development of a managed clinical network (MCN).
Society for Endocrinology  
Society for the Study of Inborn Errors of Metabolism  
Testosterone Deficiency Centre  
Turner Syndrome Support Society  
WHO growth database  
XYXO Mixed Gonadal Dysgenesis Support group
Yahoo site   provides links to large numbers of sites detailing various medical conditions & for contacting support groups
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