| Adrenal
hyperplasia network |
AHN Provides support for all ages
with Congenital Adrenal Hyperplasia (CAH), particularly adults and
teenagers. |
| ALD
LIFE |
ALD LIFE aims to help all affected
by or interested in adrenoleukodystrophy and adrenomyeloneuropathy,
whether personally or medically |
| AMEND |
Association
for Multiple Endocrine Neoplasia Disorders |
| Androgen
Insensitivity Group |
Support to young people and adults
with complete and partial Androgen Insensitivity Syndrome (AIS) |
| Anorchidism Support Group |
The Anorchidism Support Group was formed
to serve and support any person, or families of boy's, with congenital
(or acquired) absence of the testes. |
| CAH
Support Group |
The site provides support for parents,
families and carers of people with CAH as well as for CAH sufferers
themselves |
| Child Growth Foundation |
The
Foundation is the UK's leading charity relating to children's
growth |
| Diabetes
Insipidus Foundation |
Support group |
| Down's
growth charts |
Downloadable Down's charts |
| Endocrine
Society |
The Endocrine Society is dedicated
to promoting excellence in research, education and clinical practice
in the field of endocrinology. |
| EFES |
European Federation of Endocrine Societies |
| ESPE |
European Society for Paediatric Endocrinology |
| ESPU |
European Society for Paediatric
Urology |
| Endolinx |
Good site for endocrinology news
and developments |
| Hermaphrodite
Education and Listening Post |
|
| The
Hormone Foundation |
The Hormone Foundation is dedicated to serving
as a resource for the public by promoting the prevention, treatment
and cure of hormone-related conditions. |
| HYPOHH.net |
A patient support organisation for people
with one of a specific group of rare hormonal diseases called hypogonadotrophic
hypogonadism |
| Intersex
Society of North America |
The Intersex Society of North America
is a resource for people seeking information and advice about atypical
reproductive anatomies. |
| Intersex
|
Patient and family information
from John Hopkins |
| Japanese
Society for Pediatric Endocrinology (JSPE) |
JSPE has just launched the English
Home Page. |
| Johns
Hopkins University |
Division of Pediatric Endocrinology in the
Department of Pediatrics at the Johns Hopkins University in Baltimore |
| KIGS |
Contributors only, via password
available from Milton Keynes Office |
| Learning
about growth |
Serono-sponsored Information site |
| LWPES |
Lawson Wilkins US site. |
| NCHS
US charts |
National Health and Nutrition Examination
Survey - 2000 CDC Growth Charts:
United States |
| NIH
rare diseases index |
Another site that lists links to
groups providing information on a huge number of rare disorders |
| Noonan's
syndrome |
|
| Pediatric
Endocrinology Mailing List |
Hosted by Yahoo |
| Pituitary
Foundation |
|
| Ray
Williams Paediatric Endocrine Centre |
Sydney, Australia. Includes anthropometric
standards, guidelines and texts. |
| Sick
Kids, Child Physiology |
The genital development page, was developed
to help parents who have a child born with a urogenital condition
and or a genital difference. |
| Scottish
Genital Anomaly Network |
A network of a multidisciplinary group of health
care professionals with the aim of providing an optimal level of care
to affected patients through the development of a managed clinical
network (MCN) |
| Society
for Endocrinology |
The Society for Endocrinology aims
to promote the advancement of public education in endocrinology |
| Society
for the Study of Inborn Errors of Metabolism |
The aim of the Society is to foster
the study of inherited metabolic disorders and related topics |
| Testosterone
Deficiency Centre |
|
| Turner
Syndrome Support Society |
The aim is to offer support &
information to girls & adult women with Turner Syndrome, their
families and friends.
|
| WHO
growth database |
Global Database
on Child Growth and Malnutrition |
| XYXO |
Mixed Gonadal Dysgenesis Support group |
| Yahoo
site |
provides links
to large numbers of sites detailing various medical conditions &
for contacting support groups |
